FTD Doesn't Bring Me Flowers - Living with FTD

Fronto Temporal Lobe Degeneration - A different kind of dementia, most often called FTD. With this blog, I am hoping to offer information and insight into dealing with FTD, whether you have the disease, are a caregiver for someone who does or if you know or love someone who has the disease and want to learn more about it. I hope this blog helps you to understand.

Sunday, July 11, 2021

Who Am I?

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This blog is written using my experiences of living with my own bvFTD and of being a caregiver for three family members who had FTD and my h...
4 comments:
Sunday, June 20, 2021

Reminders to Keep On Going

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Lately, I have so many thoughts running through my brain that I was basically accomplishing nothing.  It is to the point that I am having mo...
Sunday, May 30, 2021

Please Be Patient

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  I am so tired today that I wasn't going to write a blog entry. Mostly, I was too tired to think of something to write about. Then an i...
1 comment:
Sunday, May 23, 2021

Different Yet the Same

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While I do try to not speak for everyone with FTD, sometimes it is difficult not to. Yes, no two cases of FTD display the same exact symptom...
Sunday, May 16, 2021

Better Informed but More Frustrated

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  If you have any doubt if I have FTD, let me tell you... I just spent 2 hours trying to get logged in. I have no clue what I was doing wron...
3 comments:
Saturday, May 8, 2021

FTD Mistakes and One Phenomenal Book

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 I hope at least some of my blog followers noticed that I was not posting new ones! I have a good excuse and because of it, this one may be ...
2 comments:
Sunday, March 14, 2021

My Mind Rambles...

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It takes a lot of energy and focus for someone with FTD, myself included, to explain things to people. I often struggle to explain what FTD ...
1 comment:
Sunday, March 7, 2021

Ramblings of the Exhausted

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I don't want to have FTD anymore. Not that I ever did, but it just keeps getting more difficult. I often say that there is no way that a...
2 comments:
Saturday, February 27, 2021

Unanswerable Questions

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If you know me, you know I talk a lot. When I was a child, my mom said that if there was no one for me to talk to, I would probably talk to ...
4 comments:
Saturday, February 20, 2021

FICKLE!

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fickle [ˈfik(ə)l] ADJECTIVE changing frequently synonyms: changeable  ·  variable  ·  volatile  ·  mercurial  ·  vacillating  ·  fitful  ·  ...
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Saturday, February 13, 2021

Communication

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When I resumed blogging last month, I vowed to myself that I would be more considerate of the feelings of caregivers. I am trying to always ...
3 comments:
Saturday, January 30, 2021

Why Do Doctors Not Understand?

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  I know fully well how difficult it is to understand FTD, especially for those who have never heard of it before. I know I didn't under...
3 comments:
Friday, January 22, 2021

ANTICIPATORY GRIEF

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I have decided to begin blogging again after a six month hiatus. I apologize for being gone for so long, but it was time I needed to regroup...
3 comments:
Saturday, August 15, 2020

Give Me a Break

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  I disproved one of my own theories about FTD. I was diagnosed in 2011 and realized, even then, that I could no longer cry. I would feel an...
13 comments:
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